Sami and I wanted to share this heartfelt post from Alex, an incredible PAC member - we are so thrilled to showcase our amazing council!

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sarahnocito via jdavid onto ICN Comms: LOOP

Sami and I wanted to share this heartfelt post from Alex, an incredible PAC member - we are so thrilled to showcase our amazing council!

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jdavid onto PACers on LOOP!
ajofriet Thank you guys!

Our dietitian Stephanie Danforth put an NG down twice to see what it was like.

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ajofriet via dawnebach onto patient experience

The PAC will be working with the exceptionally talented artist Josh Weisbrod on a few very special projects. You can get to know him now on LOOP!

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sydneyblu0415 via skennedy onto PAC

The PAC will be working with the exceptionally talented artist Josh Weisbrod on a few very special projects. You can get to know him now on LOOP!

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jdavid via skennedy onto PAC

The PAC will be working with the exceptionally talented artist Josh Weisbrod on a few very special projects. You can get to know him now on LOOP!

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skennedy onto Patient Advisory Council

Hank Green's life with UC

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jdavid via jessierickson onto PAC

Hank Green's life with UC

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jessierickson onto PAC
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skennedy Jessi, I was so excited to see this. (Do you know DFTBA..?) I watched and was inspired by Hank's videos before I knew that we shared a diagnosis - but it's always nice to find out that someone you...
jessierickson Don't forget to be awesome! I know. I loved seeing a "celebrity" in my mind, share something in common with me. I loved how well he summed up many different aspects of IBD in so little time. It's...
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skennedy That's great!! Was looking for a simple way to find out if you were a nerdfighter without sounding like a complete crazy person. ("Nerd-whaaat?" everyone would surely be...

Flat Jennie

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sydneyblu0415 via jdavid onto Misc.

Flat Jennie

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skennedy via jdavid onto Patient Advisory Council
atirloni I would more info Flat Jennie could come to Yale!!

Flat Jennie

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Hello ImproveCareNow!

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jdavid onto Gutsy Book Club!
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smyers Love it! I'm in!
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jerickson Me too!! and Jessi of course. What's first on the list?
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sarahnocito Count me in too.
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skennedy Thanks, all! The PAC is figuring out the best way to facilitate this and will be in touch with all of you (and hopefully more!) soon.
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rshonce Love a good book club. Not sure what you have in mind but I'm game as long as it is something I can read while lounging at the pool with the family!

Contributing to LOOP is a great way to share your unique perspective of the work of ImproveCareNow.

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sarahnocito onto ICN Comms: LOOP

The 11 year old son of Stacy Dylan demonstrates self-administering an NG tube for enteral feeding.

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jsmith3 via ddavis onto Patient Stories

Active teenager. High school senior.

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Active teenager. High school senior.

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smyers via sarahnocito onto Videos

Active teenager. High school senior.

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jerickson via sarahnocito onto CheerLeader

Learn to create your personal narrative.

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Elizabeth3 Please check out our one-pager for creating a personal narrative! We hope to capture the important and unique components of sharing one's story. What do you think?

"Let the Patient Revolution Begin; Patients can improve healthcare: it's time to take partnership seriously"
Nice editorial from the BMJ

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"What 'Patient-Centered' Should Mean: Confessions of an Extremist"
Great article from Don Berwick - from 2009 but still relevant

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Flyer Eating Disorders Program

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ddavis onto CP

UNC's PDSA cycle for getting two of our patients involved with the PAC

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Active teenager. High school senior.

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sarahnocito onto IBD Tools & Resources

A brief summary of the "Let Patients Help!" document uploaded earlier

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PAC members Jennie, Sami, Alex and Moriah co-wrote this post about body image and IBD.

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jerickson via sarahnocito onto CheerLeader

Did you see the PAC update in CIRCLE? If not, catch up on it right here!!

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sarahnocito Has patients@c3nproject.org been buzzing?

PAC members Jennie, Sami, Alex and Moriah co-wrote this post about body image and IBD.

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stownsend via sarahnocito onto Psychosocial concerns

Need to Know | LOOP

The latest LOOP post from the PAC - what do you think about medicine, should it be on a need to know basis? Should there be surprise in medicine?

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sarahnocito I just came across a post on e-Patients.net called Flip the Flip (http://e-patients.net/archives/2013/09/flip-the-flip.html). In it, the blogger used a term called "scaffolding the patient...

The 11 year old son of Stacy Dylan demonstrates self-administering an NG tube for enteral feeding.

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PAC members Jennie, Sami, Alex and Moriah co-wrote this post about body image and IBD.

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sarahnocito onto IBD Tools & Resources

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